Jump to content
IGNORED

Wear Red, Friday 3 Feb


daored

Recommended Posts

 

It’s strange to imagine that a wee on a small piece of white plastic can so much change your life.

From the initial joy of finding out my partner Amy was pregnant with our first child, joy soon turned when we were referred to LGI where we were informed our unborn child had a heart condition called Truncus arteriosus.

Max O’Leary was born at 19:25 on Sunday 22 December 2019, a few hours after Bristol City had lost 1-0 to Sheffield Wednesday it felt rather apt that a defeat should incur on his birth date setting him up for years of disappointment ahead. Upon Max’s delivery it was standing room only as every doctor, nurse, midwife, consultant was there, including a pimped up cot which would not have looked out of place in a Sci Fi movie.

Max was transferred to Intensive Care where a doctor examined his heart, and when asked how it was – replied ‘as we expected’ ! We quickly moved onto the miracle of Max, I sat with him that evening as he was linked to every machine going, and the following morning we visited him before heading out for something to eat – upon our return he was just led in a cot and was being moved to a side room in the children’s ward, before he came home for the first time on Christmas Eve – two days after birth with the understanding Max would require surgery within the next six to eight weeks.

Max’s surgery was held on 16 January 2020, this is now known as his ‘Heart Day’.  We carried Max down to surgery to be put to sleep and then waited for that call to advise the surgery had been successful, which was to fit a plastic tube to act as an artery, he was three weeks old.

It’s still difficult to believe that a week after a seven hour open heart surgery he was being allowed home.

Max is now three years old, and slowly getting into the disappointment of being a City fan. He has six monthly check ups as they monitor him, with each one you know it’s one closer to being told surgery is required again.

We’re blessed to have such a special, strong child. Children’s Heart Surgery Fund provide life-saving medical equipment for the Leeds Congenital Heart Unit, parent accommodation for families and vital ward resources. We also fund staff training, scientific research and new clinical roles. 

Please wear something red this Friday , in recognition of a fanatic charity that has supported my family and so many others and continues to do so. Thank you for taking the time to read this. ❤️

https://www.chsf.org.uk/

@3 Peaps In A PodCast

 

74578786-B73B-471A-A8F9-50238174C83D.jpeg

Edited by daored
  • Like 2
  • Robin 13
Link to comment
Share on other sites

6 minutes ago, daored said:

 

It’s strange to imagine that a wee on a small piece of white plastic can so much change your life.

From the initial joy of finding out my partner Amy was pregnant with our first child, joy soon turned when we were referred to LGI where we were informed our unborn child had a heart condition called Truncus arteriosus.

Max O’Leary was born at 19:25 on Sunday 22 December 2019, a few hours after Bristol City had lost 1-0 to Sheffield Wednesday it felt rather apt that a defeat should incur on his birth date setting him up for years of disappointment ahead. Upon Max’s delivery it was standing room only as every doctor, nurse, midwife, consultant was there, including a pimped up cot which would not have looked out of place in a Sci Fi movie.

Max was transferred to Intensive Care where a doctor examined his heart, and when asked how it was – replied ‘as we expected’ ! We quickly moved onto the miracle of Max, I sat with him that evening as he was linked to every machine going, and the following morning we visited him before heading out for something to eat – upon our return he was just led in a cot and was being moved to a side room in the children’s ward, before he came home for the first time on Christmas Eve – two days after birth with the understanding Max would require surgery within the next six to eight weeks.

Max’s surgery was held on 16 January 2020, this is now known as his ‘Heart Day’.  We carried Max down to surgery to be put to sleep and then waited for that call to advise the surgery had been successful, which was to fit a plastic tube to act as an artery, he was three weeks old.

It’s still difficult to believe that a week after a seven hour open heart surgery he was being allowed home.

Max is now three years old, and slowly getting into the disappointment of being a City fan. He has six monthly check ups as they monitor him, with each one you know it’s one closer to being told surgery is required again.

We’re blessed to have such a special, strong child. Children’s Heart Surgery Fund provide life-saving medical equipment for the Leeds Congenital Heart Unit, parent accommodation for families and vital ward resources. We also fund staff training, scientific research and new clinical roles. 

Please wear something red this Friday , in recognition of a fanatic charity that has supported my family and so many others and continues to do so. Thank you for taking the time to read this. ❤️

https://www.chsf.org.uk/

@3 Peaps In A PodCast

 

74578786-B73B-471A-A8F9-50238174C83D.jpeg

He looks like a handful..in the nicest possible way!!

Wishing you all the best for the future.

 

Edited by glynriley
  • Robin 1
Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Recently Browsing   0 members

    • No registered users viewing this page.
×
×
  • Create New...